LukesSquad - Support for Luke

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LukesSquad - Support for Luke

Luke is 7 years old and he was diagnosed with a rare brain tumor called DIPG on September 29th 2017. There is no cure for DIPG, but we continue to Expect Mirac Read more.

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Your donations have made all the difference, thank you for your continued support...

On the evening of Thursday September 21st 2017 Luke said something we had never heard him say before, he said we was feeling wobbly.  Waking up the next day Luke said he still had the wobbles, was also feeling nauseous and we headed to our doctors as quickly as possible.  On the way to the pediatricians, Luke was closing one eye and Nancy (mommy) asked, "Why are you closing your eye buddy?"  Luke answered, "I see two of you mommy." The following seven days were a whirlwind, with trips to Shady Grove ER, appointments with an ophthalmologist, a neurologist and an MRI on Thursday the 28th, which resulted in a conversation with our doctor where he told us Luke had a mass on his brain stem.  Luke went to Children's Hospital that night and Luke was diagnosed with DIPG on September 29th 2017. 

Since that date Luke has undergone brain surgery to do a biopsy of his tumor, an initial round of 29 radiation treatments that ended November 22nd and was enrolled in a clinical trial at Children's National. On June 16th 2018 Luke had an MRI that showed signs of growth in his tumor, which resulted in stopping the clinical trial.  Lukie underwent a second round of 18 radiation treatments ending July 23rd, had started a new chemotherapy (which we have subsequently stopped) and we continue the search for additional treatment options.

Luke is brave, Luke is positive, Luke is joyful, Luke cares for those around him more than he thinks of himself.  Luke shows us every day what it means to be a superhero.

Luke's journey, our family's journey, has taken us to a very dark world, yet despite the darkness that attempts to overshadow and overcome us, we have been surrounded by a lot of light.  Family, friends and strangers (who we now just see as friends we had never med) have lifted us with their deeds and through donations.  We have chronicled his journey on Facebook at LukesSquad. 

Luke plays with his puppy Remedy (which he pronounces REM-U-DEE that he got this past fall).  Luke is spending time with his sisters Lucy and Amber being silly and doing the things a young boy should be doing, all the while going to clinic at Children's, traveling to Sibley for radiation, taking medications at the start of his day and throughout the rest of his day and is fighting DIPG.

We have a motto - Expect Miracles and we continue to expect miracles both big and small every day. 

During this journey, Luke's mommy Nancy continues to work, carrying the burden of being away from Luke and supporting our family.  Luke's daddy Rich was laid off three days before Luke started to experience initial symptoms of DIPG and has been unable to go back to work with his primary job now being to care of Luke, to take him to clinic appointments, radiation treatments and searching for the best options for treatment and hope. 

Any gesture, any donation is appreciated beyond our ability to every truly express, but for now we thank you.  

We have Faith Luke with Thrive, Luke will Survive.

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