#HELPFORHENRY

We are so close to our goal for #HELPFORHENRY.

Let's keep doing what we can for this wonderful family.  

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Thank you for your continued support!

 

 

 

 

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Updates

  • Update

    Update 6/6/19

     
    From Dave and Chrissie: 
    Thank you to all who have so generously contributed to helping our family since Henry's diagnosis of metastatic medulloblastoma. It means so much that 
    Henry successfully completed 30 rounds of radiation to his brain and spine, with a boost to his tumor bed, or the location of where to originating tumor was removed from. He also underwent weekly chemotherapy during his radiation regimen. 
    Upon completion of radiation, Henry was given a one month break so that his body could rest and recuperate. However, about two weeks into this break, he lost the ability to walk. His leg motor function weakened severely with no real warning. Henry was admitted back to Goryeb Children's Hospital for observation and his scheduled follow up MRI of his brain and spine was moved up and done. It was seen that the cancer in the brain and spine is much improved, however there was an area of enhancement in the spine that would account for the leg motor function issue. The cause is unknown. The MRI was repeated three weeks later and the scans were sent to Memorial Sloan Kettering for additional consultation. It is currently believed to be spinal cord damage from the cancer and the recovery of the nerves is unknown. 
    At the moment Henry is confined to a wheelchair but he receives physical therapy every day and continues to get stronger so that he can do more. 
    Henry is about to start his second of six chemotherapy in patient cycles at Goryeb. We hope that he tolerates the medicine as well as he did last month. He should complete his chemotherapy treatment in November if his MRIs continue to show a reduction in cancer. 
    Henry's need for tube feeding is still very strong. Without the prescribed steroid, he doesn't have the desire or appetite for food. Therefore, it is essential that he get the caloric intake and hydration necessary for him to stay as healthy as possible. This requires Chrissie to be here around the clock to continue to care for him. With feedings at home, hydration through the tube, and inconsistent bowel functions, it is essential that Chrissie remain home and not return to work. 
    Henry has a very long road ahead. He will undergo a lengthy dental procedure later this month to repair several teeth damaged from chemo and radiation. His physical therapy is ongoing and equipment is starting to be needed for his every day living. The goal is to get Henry cured of cancer. Next goal is to get Henry's legs stronger and see how much nerve function can be returned. The latter we will have to be patient for. As the old saying goes, "Slow and steady wins the race."
    Our twin sons, Charlie and Joe will begin their second year of college at the end of the summer. We are beyond proud of how they both managed to complete their first year of college successfully, especially given how Henry received his diagnosis just days before they returned to school to begin second semester. The boys have been by Henry's side every free moment they have and they wouldn't have it any other way. But we want them to know that their future AWAITS!! College is a path they need to remain focused on and continue to strive to do their best. 
    Our family remains so incredible humbled by the support that everyone continues to give us. We know that this life we are living is not one we would have every thought we would be waking up to every day, but we are walking through it together, the five of us. Having the support of friends, family, community, and so many others who are touched by Our Boy Henry is just the most amazing gift. Our very deep thanks.
    Dave and Chrissie Aulenbach

  • Update

    So far, we have done great.  Henry is in for a long road of treatment which is going to be very costly.  Please share the giving grid with anyone you think would like to donate for this wonderful family.  And thank you all so much for support thus far.  We appreciate each and every donation!

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Campaign Details

Chrissie and Dave Aulenbach recently brought their young elementary school age son Henry to the hospital as he was suffering from terrible headaches. Henry was found to have a brain tumor as well as some spots along his spine. He already has had surgery to remove his brain tumor. Chrissie and her husband and working with the doctors on getting a formal diagnosis, but based on the tests they have run over the last few days the oncologist is quite certain that Henry is dealing with Medulloblastoma, a form of brain cancer.

You may know the Aulenbach family from around town. You may recognize Chrissie from her time on the Randolph Board of Education, or maybe your kids graduated high school with her twin boys in 2018 (both are currently freshman in college). She may even have tutored your child in trumpet. Or maybe you recognize Dave Aulenbach from his time as Vice Principal at Randolph high school or as a music teacher in our school system. Needless to say, they have been an integral part of our community for many years. They recently downsized to a townhouse about 30 minutes away, but Randolph will always be their home.

Chrissie describes her son in this way "Henry is a wonderful boy with a lot of inner strength. He loves to be a good friend and helper and loves making others happy. He likes bossing around his older brothers and buttering up his dad! He's as sweet in real life as he is in pictures."

Needless to say, the road to a cure for Henry with be a difficult one. The oncologist is preparing the family for a long treatment regimen with a lot of hospital stays. This GoFundMe account will help offset the cost of medical care for Henry and help with their bills. Of course prayers and good thoughts for Henry are also greatly appreciated! 

OrganizerRenee RosenbergContact Organizer

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